 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Are you at a major cancer treatment center? We all had heavy thick mucous. I was given Guiafenix (sp) for it and it helped some. We all lost most our taste. The fact that they are frying his saliva gland would make me want to continue the Salagen but I'm not a doctor.
How many H&N patients has the doc treated? Has he given others Salagen? How does he account for the loss of taste and mucous in his patients not receiving Salagen? Also there is no requirement that he take 4 pills a day. My recommended dose was 3-6, whatever worked best for me.
One other thought, did you rent the suction machine? I'm certain that would help during the day. Biotine mouth spray also may help in addition to the baking soda/salt rinses.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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