Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | About 2 weeks post Tx I started to go online to find a support group and I found an important sounding BIG NAMED support group that was, like you said, small potatoes. I mean I would post and 2 or 3 days later, if I was lucky, I would get a response. Shortly afterwards, I get an e mail from someone big and famous on this site telling me to jump ship which I did and I am so thankful that I didn't continue to waste my time at the other site.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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