Denise - I am glad to see you back. Reading your post is so eerily familiar to what I felt with Dan's dx. It is very very hard to handle when you cannot find anyone with the same type. To this day I have now met some people with salivary gland cacner, but not the same type as Dan's. I say that I am past that anxiousness, but I still spend time each week searching... So I can't tell you that your frustration will go away, but perhaps it will get easier.

What I realized is that even though the OCF folks here on this site don't have the exact cancer type - everything else is VERY similiar. Treatments, side effects, fears, frustrations, etc. So in that regard this is the best place for me. I have done intro's and joined other sites and they are like comparing a small town in Mississipi with New York. Almost pathetic and I hope those people find there way over here. This is the most supportive, caring, compassionate and fun group of people I have ever had the pleasure of "meeting".

Please feel free to PM or e-mail me and I will help anyway that I can or if you would rather talk we can exchange phone numbers.

Keep posting and join in the group here. It was a little tough at first - kind of like the first day at a new school or a new job, but then I just jumped in and now I don't know what I would do without this place.