 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Deb,
That was the most disturbing part of my Tx, i.e. his nurse telling me that I was really having a tough time and my taste and saliva should return within a couple of months and I naturally assumed she knew what she was talking about.
It's real funny yy first post on this site was about 2 weeks post Tx and I was having a tough time and I described what I was going through and what I was able to eat and how bad I knew I was doing and within minutes I had like 8 or 9 replies telling me that I was normal and if anything, I was better than normal. Man that really opened my eyes and gave me a mental boost when I really needed it. I just couldn't believe Trotti's nurse lead me to believe that I was doing so poorly.
Last edited by davidcpa; 04-02-2008 12:17 PM.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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