 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Michelle,
Don't let him believe that just because he is loosing his taste "so early" as the idiot doctor put it that it will not recover. I lost my taste within the first 3 weeks and my RO's nurse kept telling me it would return a month post Tx. I didn't have the benefit of this site so I believed her. She also told me my dry mouth would only last a couple of months. I was set up to feel deficient when those things she told didn't happen only to find this site and realize it probably NEVER happens that fast. My taste and dry mouth did almost fully recover but it took me all of 16 months post Tx and the elders on this site say 18 months is about the time one stops recovering so I'm normal. Don't let him lose all hope for recovery from taste because no one can predict that, only time will tell.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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