I started this thread because I heard the frustration in Mary's voice, wondering if she would ever be able to eat again. I knew that she was having discomfort, and didn't know if her lack of swallowing was pain, or fear, or perhaps some of both.

Do I think she could have done without the PEG? Absolutely not!
She definately has needed it for adequate nutritiion and hydration. And we have all been thankful that it has been there for her to use.
The docs just told her it could come out as soon as she could maintain her weight without it. They never discussed the possibility of strictures, though they did discuss decreased saliva, atrophy etc. She does currently work with a speech specialist and is doing exercises. I now realize that she could have that tube for 4 months, one year, 4 years-there really isn't any way to tell at this time.
As a dear friend, Mary has many virtues, however patience is not one of them! So, I know she is having a difficult time with the length of the recovery process. I will just be there for support, and I will be thankful that she is getting the nutrition she requires via the PEG.

Many people on this site are passionate about there positons regarding the PEG, and it has been very informative and interesting to read. But one thing we all have in common is that we want the best outcome for one another, whatever that may be. However long she needs the PEG, then that is how long she will have it- I'm just glad she is still here!

Liz


CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.