Hi Everyone,

Well, Mary finished RAD about two weeks ago, and as I expected from reading things here, this has been the most difficult time. Thick, copious secretions and a moderate to severe amount of mouth and throat discomfort. With a LOT of encouragement she has increased her pain med enough to tolerate the discomfort.
My concern is regarding a swallowing issue and the PEG tube. She is very reluctant to swallow, she really avoids it at all if she can. Not even swallowing water at this point, may 2 to 5 sips a day. She has become totally dependent on the PEG tube, I sense not only physically but emotionally as well. This has surprised me, because she really didn't want the tube at all. Now she says it is "just easier".
My question is how much should she be "pushed" to swallow? Her family is extremely supportive, but not pushing her to swallow at all. I think it is more fear than actual pain. Is this perfectly normal? Does she just need more time? Or should I be the mean friend and start getting bossy?? I can be really good at being bossy (at least that's what my husband says).

Liz


CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.