Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lori,
I have had a PET/Ct every 6 months without even having to ask. It is suggested by my MO not the RO or ENT.
I am sorry to hear you and Don are facing this beast again plus another battle in and of itself. (I can't help with the housing unless you need something more in the Dallas area.) I will certainly grant your prayer request for your friend's vacant grandmother's house to be opened to you and Don and add my prayer that He provide you with comfort and peace during such difficult times.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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