OP Supporting Member (50+ posts) Joined: Aug 2003 Posts: 71 | Thanks Joanna, yes, my first call was to the hospital and the social worker that has been assigned to us. They did advise that we could park an RV in the parking lot, but my husband says he would not be comfortable.
There is a possibility that a friend will let us use her grandmother's home that is vacant right now. Say a prayer that this works out because it would only cost us utilities.
Gary- I agree and wish we had our questions documented each time, and the oncologist's response. We have contacted an attorney who is interested in the case...maybe if they take it the protocol will change. That's what we want. No one else should have to suffer like Don.
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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