OP Supporting Member (50+ posts) Joined: Aug 2003 Posts: 71 | Sorry there has been too long between my posts but dealing with Don's (my husband) new diagnosis of leukemia has been all consuming.
When we found out about the leukemia we also found out that his tonsil cancer had mets to his lungs & chest. Wednesday they told us that they have to start the radiation on his chest immediately. He will be receiving treatment at Cedars Sinai Hospital in Los Angeles. We live almost close to 100 miles from the hospital and the doctor doesn't think it will be good for Don to take the 2 hr drive back and forth. Does anyone know of somewhere, similar to Ronald McDonald House, we could stay that would not be too expensive. He will need to receive 7 weeks of treatment.
I would also like to know if you are a tonsil cancer survivor did you have a CT scan of your chest during your follow-up exams, after treatment? We asked numerous times if it wasn't necessary and they kept telling us "no" and that if he had mets to the lungs he would have symptoms. He still doesn't have any symptoms...no problems breathing...and the lung oncologist advises that the cancer in the chest & lungs has been there for at least 1 yr. We think that the doctors should have had Don have a chest CT maybe 6 months or 1yr after treatment was finished.
Thanks in advance for all your support and help,
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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