 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=bb1217]I would like to know patient reaction to Ethyol during radiation treatment?
My husband has oral cancer and I am getting mixed opinion and I am confused. Please help.
Thanks in advance [/quote]
I had Ethyol but I only lasted about halfway through the treatment and developed an allergic reaction to it. I have saliva although it is noted as "thick and ropey". The reaction I had started shortly into treatment and got progressively worse and eventually cause a severe reaction within minutes of the injection so it was decided by the medical team to stop. Even if I had to do it again, I would consider the Ethyol because of the documented benefits of salivary gland function.
My blood pressure has been about 112/76 for many years but when it went lower I don't know if it was from dehydration or the Ethyol or the chemo. My creatinine went to 1.2 as soon as I had the first Cisplatin dose and never went down.
I hope this helps.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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