 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | 007, Christine and Mark,
Believe me I know what you all are going thru and I wish I could snap my fingers and time warp you all ahead a year but all I can say is I am just now REALLY starting to enjoy eating again and it has taken all this recovery time for me to be able to say that. There is nothing I can't eat now and I push myself to see how many bites I can swallow without reaching for the liquid. That, to me, increases my eating pleasure because I haven't been able to do this since that horrible life saving Tx began. I still have a little dry mouth but nothing like what I had at your stage. My taste is almost back to pre Tx and it seems to improve as the dry mouth does. Hopefully you'll will take less time than me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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