 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
It sure is hard being patient waiting to get back to normal. I completely understand how you feel, it sure is a long road. Just watching TV and seeing commercials about everything I cant eat makes me sad. Im about 4 months post treatment and still barely eat. I can handle yogurt, pudding, some very soft veggies but no meat or anything dry like bread or snacks. My taste is at about 80% which seems to be good, but I have no saliva. I did try a medicine (Pilocarpine) to promote saliva. It didnt work, made me sweat and sick to my stomach. I know there are other ones out there, check with one of your doctors.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
