 Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Lepreckaun, You and I finished about the same time and I'm in the same boat. Some of my taste has come back but my tongue feels like somebody hit it with a torch if I get ANY spice on it. And for a cook and BBQ judge, that sucks big time. Everybody says...give it some time and most of it will come back....so I sit and wait and ejoy my PEG tube and broths.
Glad you're here Too.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
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