 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
Thank you for the update. You have been heavy on my heart the past few days. Not only are you a survivor and an inspiration to all of us, you are the most courageous warrior I know! I know I speak for each and every person that has come in contact with you on this forum, if there is anything you need, please feel free to ask. It is truly an honor to call you my friend.
I pray for His comfort and peace for you and for Him to continue to fill your heart with love. Give my love to the family.
Your friend,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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