Marlene and I have been emailing and talking for the last couple of weeks and I asked her to post again, but she has not given you all the detailson what they plan to do.

The biospies in the upper esophagus came back as carcinoma in situ in two spots, if I understand
correctly. They are planning to remove her entire esophagus AND voice box, and pull her stomach up to her throat. The only way she will be able to speak is with an electrolarynx. TEP is not an option if they pull up stomach. I am confused now as to whether she will have a trach. If she does, she won't be able to smell or blow her nose.

She is now telling us the one doctor says radiation and chemo will be used if PET positive. Why not try that first rather than the drastic surgery?

Does anyone know anyone who has had cancer in the esophagus? How was it treated and what was the outcome? What was their quality of life?

The surgery they are planning to do to her seems drastic to me for what is severe dysplasia, but I'm not a doctor. The one doctor was going to try to laser it off. I don't know what happened to that option.

If anyone has or knows of someone who has had this or the surgery, I am certain she would appreciate the input. What they are proposing is very scary.

Marlene, please correct any errors or omissions I made in this post.

Thanks and take care,
Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I