Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Thanks Gary. I'm glad to hear that someone had this surgery and had good quality of life because the only person I knew that had this surgery never came out of a coma.
I wonder why they insist upon removing her voice box? Actually, I believe there is some disagreement between the surgeons on hwat surgery is needed, but Marlene didn't pursue it or question what it is about. There is supposed to be no cancer on the voice box. She is being seen at HUP, Hospital of the University of PA, in Philly which is a 5 hour drive so bopping in for another appt with questions isn't as easy as when it is nearby. This is where I was treated and at least one of her dr is my surgeon. He is not the one removing the voice box. She seems ot have 3 or 4 surgeons on this operation.
If anyone else knows anyone who had esophageal cancer and what their treatment was, I'm certain Marlene would like to hear from you. She had her PET scan tomorrow. Don't know how fats she will get the results.
Thanks, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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