Paula,

I agree with the very knowledgable folks above. It was much worse for me the 1st 2 weeks after treatment. I had the PEG from the beginning and was glad I did even though I didn't use until the last few weeks. If you have Zofran ODT that workerd great for controlling my nausea. It's the under the tongue one. My wife would mix it with water and put it down my PEG tube twice a day. Once we started doing this my nausea came under control. I had a pump feeder for my tube feeds, it ran off battery and the rate of feeding could be slowed way down so it didn't nauseate me. Once I kind of got used to the nutra 2.0 (canned liquid food)then we spead it up a little. I started out doing one 8oz can over 6 hours I think. Anyways if I went faster I got sick. I had to sit up too, laying down was no good. I never could get to the 4 cans I was supposed to do daily. If I did two I was lucky, but I drank lots of water to keep my swallowing going. It hurt very badly but I didn't want to lose my swallowing. That's where the pain meds helped me the most.

My wife and I have been married for 19 years and I still had some pride and bodily functions I liked to keep private. No way during this treatment, total loss of dignity is what I called it.