Paula - It really does get better! My son did not have a PEG and the three weeks after treatment ended were absolutely the worst! He went from 225 down to 185 and after that he wouldn't let me see the scale when he got weighed. I was really worried because of the nausea and not being able to drink anything. He was trying to so hard to control the nausea. He would just sit there and stare at the bowl of chicken broth and just take a couple of spoonfuls and that was it. When I tried (every couple of hours) to get him to take something he would get irritated with me. Anyway, I think for a caregiver sometimes the 3 weeks post treatment actually seems to take a lot longer than it really is. At one of our worst points, I decided to look at the calendar and I was shocked to see it had only been a few days post treatment. Then, just before the third week started, it started getting a whole LOT better! It will get better for you and your husband, too. THere are lots of good ideas on this site and good suggestions for PEG feeding. Sometimes you have to try different things before you find the one that works. Hang in there and take care of yourself, too.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)