davidcpa
Patient Advocate (300+ posts)
Member # 3506

posted February 23, 2007 05:20 AM
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Paula,

Usually the 2 to 3 weeks post Tx are the worse for everyone. I didn't have a Peg and I wound up in the hospital in my 2nd week post Tx. Around the 3rd week was when I began to notice I was walking out of that dark tunnel for good. Even then he will have bad days so don't think it's a relaspe. That period of good days and then a bad day lasted for about 2 months but remember we can all react differently.

As far as wieght loss, I lost 30% of my body weight without the Peg but I am now 6 months post Tx and I have regained all but 10 pounds and I don't think I want those back anyway.

Try Carnation Instant Breakfast VHC. It has 560 nutritionally balanced calories in a 8 oz can and helped me tremendiously when getting the most bang for my buck so to speak was important. You don't need a prescription but you order it through your pharmacy, like Walgreens or CVS. Remember to specify VHC and 560 cals.

Like Gary said, be patient. I know that's easier said than done but all of us experienced the same things that he and you are going through now and we were all told the same things we are telling you now. It will get better and better but like in baby steps, not leaps and bounds. One day he will notice an improvement and he will feel like this is it but he may not see another improvement for a week or so. Improvements will come though. Six months ago I wouldn't have thought I would feel the way I do now. I also wished it hadn't taken 6 months but that's just the way we all heal from this barbaric treatment.

And it's OK to complain, we all did.

David, I moved this thread to "After treatment Issues" because it was hijackinng Amy's thread. Please respond to it in this topic instead. That includes anyone elso responding to Paula and not Amy.

[ February 23, 2007, 07:52 AM: Message edited by: Gary ]

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David

Age 58, SCC Stage IV base of tongue & 2 left nodes, non smoker, casual drinker, No surgery, Cisplatin x 3 concurrent with IMRT x 35, Tx completed 8/28/06. Complete remission CAT 10/24/06.

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Posts: 469 | From: Gulfport, Florida | Registered: Sep 2006 | IP: Logged