Hi Paula, Jack had a PEG tube and it's a lot of trial and error to find the best regime. Let me start with the basic nutrition. Whoever put it in needs to take some responsibility for getting you the right formula and dose. Just because the nutritionist is out sick doesn't change that. I would call today to get someone to address what you are supposed to be doing food wise to stablize him until the nutritionist gets back and makes a full assessment on the type of formula and number of cans per feeding and per day. There are standard protocols based on weight. For Jack the goal was 2200 calories per day. If they write a prescription and call it in to a medical supply company then insurance may pay for it.

Also there's equipment that needs to be ordered. You need 60 cc syringes to flush the tube, if they haven't given you a supply of those ask for some. They can be cleaned and reused. He may not be able to tolerate the can being poured in by gravity at this point because of the nausea. Jack had the same issue after treatment and we had to do his feedings through a kangaroo feeding bag that comes with a plastic roller to control the flow. The bag was hung from an IV pole - and how high or low affects the rate it drips - and we kept the flow very very slow. At this point it was taking about 2 hours per feeding. What you're dealing with now is trying to stabize the nausea. When you call make sure they know that he isn't tolerating the cans of boost and not getting any nutrition.

Remember this is all temporary as everyone has said. It will get better. Also make sure he is getting 2-4 quarts of liquid every day, whether it is by the peg tube or by mouth, to prevent dehydration. If they are only giving him compazine for nausea ask for a stronger medication - there are several they can prescribe.

Regards JoAnne