Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Tim,
As you know our Tx was identical except for your surgery and feeding tube. I am appx 1 month ahead of you in recovery.
I wouldn't call it chills but I have been colder than I was before my Tx. I thought it was from my weight loss. I haven't had any doc express any concern over my post Tx blood work so I assume my thyroid is OK as well.
As far as that yellow spotted tongue thing...the only problem I had with my tongue was it was coated white for about a week or so post Tx. It wasn't painful though and it went away on it's own.
As far as taste...I can taste just about everything I try for the first bite or so. After that, the more I chew, the less I taste. I can taste some things much better and longer than others and some things don't taste good at all.
Dry mouth is the thing that really ticks me off. I have to have a water bottle with me everywhere and I'm ALWAYS leaving it behind in stores. I already have a water bottle stashed in every room of my house and I guess I need to put a case in every car I drive. I went on my first post Tx bike ride yesterday and I wore a Camelbak on my back. I could not have ridden without it. I ride with my mouth open for max O2 so you can imagine what that does. The ride didn't bother me as much as I thought it might but constantly reaching for the water tube was cumbersome and will difinitely affect the quality of future rides. UGH.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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