Hi Jen! Listen, your going to have to work real hard & build those muscles back up. I think getting some meat back on my body was one of the best things I did last summer & fall. Push to see if the current PT will research enough to come up with some effective treatments. What they have to deal with here isn't that common for them. I lucked out & had some excellent people on my side & one of them did some very intricate specific things with micro muscle sets at the rear base of my skull or very top of spine. Also in my neck in the area of dissection. She had consulted a colleague somewhere & done some research on her own. It seemed weird at the time but after a week or so I felt better & stronger. I also remember doing side lifts with small weights while having a head strap on connected to a rope through a pulley & weight system puuling my head to the left to strengthen the right neck muscles! I felt ridiculous at the time, but I sure got results. I worked real hard. I had to push them to let me start weight training & after a few weeks they let me start doing light stuff. During all of this I had two different PT's that would focus on different areas with extreme massage, heat packs before & ice after. One of the guys actually bruised the hell out of my upper arm! He said it was neccessary to get deep enough into the right regions of muscle. Bottom line is after a couple of months I was doing weight lifting, bike riding & running. I felt really strong & able! You can do it! Erik


dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04