 Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Jen, I am a little over 3 years out and continue with the PT. Am currently trying out cranio-sacrial therapy? might have the spelling wrong, if you are interested I can email you more about it. It has helped loosen up my neck. We are also working on getting my mouth to open wider. I recently purchased a Wedge type pillow to elevate my head at night and that seems to help a little with the swelling I still get on the left side of my face. Take Care, Carol
p.s. I lost about 35 lbs initally and have put it all back on and SOME!! SMILE!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| 
