Well, Terry, I'm willing to adjust to a NEW sort of normal. From reading this forum, I realize that the fluid buildup from our missing nodes is normal and eventually will decrease with time.

My ENT surgeon was disappointed that I wouldn't continue to go to therapy at the CCC, but I was a bit put out that I drive one hour to get there through heavy city traffic and the therapist would sometimes be on the phone and send someone else in to do the work on me while she was on the phone (it sounded like a personal call)

Still, I'm hoping someone has some answers as to what might work for physical therapy. I'm just so determined to get myself as close to normal as I possibly can and I'm willing to work hard at it. Logic tells me that I am for sure not Lance Armstrong, but I'm beginning to think I'm not finding the right sort of physical therapy.

Jen