Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hi Tonya, When I was in my darkest part of the "after treatment" depression I had one certain thought that haunted me. I have a 6 year old grandaughter, Shelby, who is very close to me. For whatever reason she has always seemed to need me more then her sister who is a year older. She was 4 at the time I finished radiation and I would watch her and realize that if I died she would never remember me. She was simply to young and I was aware that I had no memories of my own from when I was 4. That bothered me more then anything. Does David have the strength to maybe make her a short simple video? I made build a bears for the two grandaughters, with a voice box inside that wished them love and good night from nana, in my own voice. It used to take my breath away to think that all those years of fiercely loving Shelby would not be remembered. But one thing comforted me and that was the realization that somewhere in her was a part of her that was shaped by my actions, by my love for her. She might not remember me but she had a part of herself that was only possible because of my interaction with her. I do hope that David will take comfort in the fact that he spent the most formative years with his daughter, he was an active part of shaping who she is and will be. I think of you and your brother every day and pray for a miracle. Take care Tonya, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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