 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sara,
I know how tough things are right now but you both only have 3 weeks left of treatment. Congratulations! My mother had taxol for 8 months with a pretty big dose once a month. She did better with that than any other chemo.
The radiation does stay about the same with a lot of thick mucuous for a few weeks after it ends. I worked up to the last 2 weeks of radiation but it was more the chemo that got to me. John will most likely get pretty fatigued a few weeks after the radiation. It hits some people during and some people later and some even later. My fatigue was not as much of an issue until about 3 months post treatment. Keep up with the blood counts and ask for Procrit as the red blood goes down. It really helps. Also, any excercise will get the oxygen flowing better in the blood, even a walk back and forth down the driveway is better than nothing.
Good luck to you and John.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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