Hello all,

Thank you for your supportive words on my last post...John is doing well, he is finishing his third week of radiation with three more weeks to go...plus he will get carboplatinum and taxol each Tuesady for the next three weeks...I wondering what to expect?

He now has some mucositis, soreness and swelling of his flap, and pretty significant pain near his temple. He is taking neurontin and oxycodone for pain ... using the gtube for feeds (the falp and tongue swelling are making eating really difficult) and he is still able to go to work for half a day...he has not chucked anymore chocolate snack pack puddings, but i told him he is welcome to do so in the next few weeks (especially since it was so funny after the fact!!!!)... wonder what else to expect... we both are a little scared about how much sicker he is going to feel...right now he has good days and bad days...we expect mostly bad for the next few weeks...but any other suggestions would eb greatly appriciated...

thanks in advance,

Sara


Wife of John, 40yo, SCC R Tonsil (3/10/04), s/p resection and rad neck, forarm falp, taxolx3 pre rad, rad (30 txmnts) & taxol/carbo. Now he is 49 and doing well!!!