"Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Hey Sara, Dan had same mix of chemo drugs that John is having. He had seven doses, one every Monday. He would go pale as the drugs went in. It took about 4 hours total. On Monday and Tuesday he was good, started tiring out and feeling worse Wed thru the rest of the week. He did not lose all of his hair and didn't get very sick from the chemo. As radiation went on (he had 41 treatments) he got worse, was very weak.He lost his voice totally for about 6 weeks...that was a bit hard because no one told us that might happen. The last weeks he made it to treatment and back home to the chair and slept most of the rest of each day. He had max radiation possible and it was hard even two weeks after radiation. He used the PEG from week 3 on and in this last month (almost 3 months post treatment now) he has been able to drink some liquids and eat some food. He is hoping to get rid of PEG after next week. He is so much better now...just remember to measure in weeks, not days. That helped us alot. We have a great support system and total belief in a God that crys with us and knows what we are going thru, which also helped us manage. Just keep thinking it does get better!!!b
Take care and know you are over halfway!!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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