 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Remember Erik, you are just a man! God picked the right sex to have babies because if it was up to us, there would only be about 1 baby and the rest of us would hear the story and avoid the deed!
Seriously, virtually every one here has experienced what you are from one side of the fence or anther. It is pretty rough for caregivers or patients. Take it a small step at a time and stop every week or two and note your progress. You most likely won't see it day to day but after a while you will. Keep swishing some fluids around and keep the goo cleared out. It will get better as time goes on. Hang in there and remember...we all need someone to lean on. We are here for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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