DCS - I'm in line for you right behind the others. I was my husband's caregiver and I thought we would never get to where we are today and it has already been 7 months out of treatment and he is sooooo much better. He is happy, working and the little (and I mean little in comparison to what you are in right now) things like dry mouth and taste issues are all works in progress. Our marriage is at another level which I didn't think could get any higher.
So, hang in there, you are doing great. Just stay in touch with us as often as possible.

Please listen about the PEG tube, it made all the difference in the world in my husband's healing. I believe it should be mandatory for all patients before treatment. They never asked us - they just scheduled it and said be there. You can also use a gravity bag and your husband can be feeding himself slowly while he is resting, watching TV, etc. My husband lived in his lazy-boy chair - I don't think he slept in our bed much during his treatment...especially when the mucusitis gets difficult. On that note, a portable suction machine helped greatly - the hospital can arrange for that and your insurance will pick up the rental. Be strong and keep looking down that road - the light at the end of the tunnel is there. If I/we can help, just contact me.
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Marty
CG to husband,SCC Stage 4, left tonsil,3 lymph nodes,HPV+, dx 4/06, TX IMRT X 35, cisplatin/tarceva X35, neck dissection 11/06


MARTY-Caregiver to husband (non-smoker/non-drinker)Dx 04/06 SCC Stage IV left tonsil-3 lymph nodes,HPV+,Tx 35xIMRT,35xcisplatin/tarceva,neck dissection 11/06, beginning HPV vaccine JHopkins 04/07.