 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Joan,
I am sorry to hear about your father. My mother was given 4 weeks to live in March 2000. She passed away December 11, 2000. It was bittersweet because in the end she only weighed 50 lbs at most and to see her in that state was very tough. I cherish the last nine months by her side. In many ways it was the most wonderful time of my life. I, too, prayed for God to be merciful in her last moments because she was so afraid towards the end. The last few days were really awesome in so many ways. I could tell she finally found peace in life at the end.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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