This is just my humble opinion, but let's face the fact that we are all in the same boat. Be it patient or caregiver - none of us want to be in this situation, but the facts speak otherwise. However this disease came to be in our lives - whether through a person's poor choices in life or just the twisted hand of fate, we must concentrate on surviving and beating this thing with every ounce of our strength. I am just a caregiver - I do the best I can, with what I have and with what I know, to help my husband in his personal battle. I am so inexperienced and frightened sometimes..I don't know whether I'm coming or going. But I muster on...and so does my husband, and so does everyone here - each in their own way and in the best way they know how. I am grateful for the kind and caring people here, who honestly give it their all to help others - while still facing so much themselves. It is through the contribution of the people here in this forum, that we learn. We learn not only in information on this disease, but also on how to be patient, to laugh, to give and to hope. These to me, are valuable lessons - and it is through this forum, that I have gained so much. As a caregiver, I may not be able to offer much in the way of treatment advice - but I hope to offer support to others, because I know how this can turn a family's world upside down. My husband's journey through this illness is my journey too, and I consider everyone here a part of my "family" - since a family shares things together. Best wishes and peace to all.