Gary,
It sounds like you were much more of an activist and more thorough than I from the very beginning. My wisdom comes in hindsight from experience. In the beginning, like most of us, I , who knew absolutely zip about cancer, received my information from the doctors and did whatever they told me. I never heard of IMRT until I came to OCF and it was never discussed by any of my doctors.

Recently I emailed my radiation oncologist, who is very taciturn, and asked, " which kind of radiation did I have, IMRT,or regular?". He emailed me his one word reply: " regular ". Later my oncologist, who is very affable, explained to me why regular was probably better in my case, but the man who radiated me saw no need to explain anything.

When we are first diagnosed and every thing is spinning and time is of the essence, most of us don't stand back and do research...I didn't. MD Anderson's reputation is so stellar...who was I to question the experts. And, I do feel like I got excellent treatment...but that does not change the importance of being informed or the need to be your own advocate.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.