Thanks to you all. I have read your replies over and over again. I feel much better about not having the post pet scan done. It seems many of you have not either. I was just under the impression that a pet scan would show more than a cat scan and as Mary pointed out, I don't want to leave any stones unturned with this unknown primary thing.
I also know all too well what Daniel said about this being an unforgiving disease. Jimmy's sister and father both passed away with brain tumors. His best friend past this past summer with colon cancer, and one of my best friends is now battling breast cancer that has spread to her esophoagus (sp?) and stomach.
Please don't get me wrong - I am very happy and thankful that his tests came back clear, especially considering all the negative going on around us. Normally, I am a very optimistic and proactive kind of person. It's just that I had it in my mind that if the tests came back clear, this emotional rollercoaster would end and everything would go back to normal again.
What I'm gathering from all of your posts is that most all of you have had and occasionally still these same doubts and fears at some time or another. What I need take away from your post is try "not to worry TOO much", "enjoy the good reports", "stay in the now, take it one day at a time", "make peace with the fear of it returning", and probably one of the most important..."find a new normal."
All of this is excellent advise and I will try my best to heed it, find that silver lining and enjoy the time we have now.
Thanks again to all of you!