Vickie - I, too, sometimes wonder when it will be okay to relax and not worry every second about what might happen- tomorrow, next week, next month etc. I've tried to live moment to moment and take some solace in the doctors' positive comments. Some days I can do this pretty well, other days, forget it.

The uncertainty about cancer is very, very tough to deal with emotionally ( at least for me as a caregiver who wants to make sure that no stone is left unturned in the path to recovery). I would guess that with an unknown primary there may even be a bit more of the "not knowing" part of this horrible, horrible disease.

So, all this is to say that I think it's pretty natural to feel anxiety, especially when the completion of treatment is so recent. From all the postings I've read here, it seems like some people are able to get a little more relaxed as time goes on, especially as Gary says, when they hit some agreed upon milestones like 2 years.

One thing I've learned from my husband getting locally advanced cancer of the tonsil is how brave so many people with all types of cancer are because, let's face it, there are very few people who have had cancer of any sort that aren't left with a legacy of having to make peace with the fear of it returning.

John never had a PET scan and they seem to feel it wouldn't be helpful at this point. They went with ultrasound, chest xray, CT scan and MRI and then CT scan again at 7 weeks out. I asked about PET/CT but they didn't feel it was necessary and is only used in certain cases in Canada.

all the best
Mary