Tami,
I wish I could help you more but your mother's treatment protocol sounds very complex and over my head. You may wish to contact Brian directly for advice.

I take it she is not being treated at a comprehensive cancer center but at a regional hospital?

There are a few basic things I would ask:

1. Is she constipated and is that being managed successfully? If she is on narcotics for pain relief it is almost a given.

And are her pain relief meds adequate while we're on the subject.

2. Is she getting anti-acids for stomach lining irritation from the chemo (especially Cisplatin) like Pepcid AC?

3. How many different types of antiemetic meds is she taking or have access to?

Most of us had problems with our blood counts near the end of treatment. They can do transfusions and have medications (like Procrit)for that also.

You need to ask again about the staging. Her treatment protocol is not typical of a stage 1 or 2.

It's very easy to become discouraged at this stage of the treatment. Most of us were pretty beat up and suffering from depression as well. Negative state is a given. Are they managing that also?

I hope that this helps.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)