I could really use help with making my list of questions for the docotors (both rad and chemo drs).

I have been thinking about this idea: Having her finish her last 3 imrts and then cancel/hold her remainder chemos from the current oncology group. Then send her down the MD Anderson for another look and future chemos (if deemed necessary). They may be better at preventing the horrible reactions and treating them right in a Cancer Hospital vs a General Hospital.

As far as my Mom's treatement regimen it is:

IMRT x 40 (37 down with 3 left). The first 20 were once daily and the last 20 were twice a day x 10 days.

Chemo: The original plan was: Docetaxel/Taxtore, Cisplatin, 5 Fu. They wanted her to have this 4 times with a 2 week break in between each. She had a port inserted in her chest prior to the chemo. She goes in on a Monday and stays for the day while they inject the first 2 drugs, steroids, anti naseau stuff, then she goes home with the flurocil while it is pumping for 5 days. On Friday afternoon they pull the FU. After the first chemo run and due to how sick she got and the level of toxicitity the decided to pull the Docetaxel from the future chemos. They ended up waiting 3 weeks before doing the 2nd chemo. Her counts still weren't good but they decided not to wait anymore. So she just finished week two last Friday and she is worse than she was after the first run. I know she is at her darkest time right now but she feels she can't do anymore. She is not taking calls from anyone anymore-according to her husband it is from the pain and lack of ability to speak. I also think she does not want me to hear her in such a negative state. (Trying to protect me from worrying)

One important part of her diagnosis is that after being scoped/biopsyed and a CT scan they staged her at 1. (With only a 2 cm or smaller tumor on the left side of her tongue) They felt the lymph nodes were good and the ct confirmed it. The final scan was a PET scan and that is when they determined that it did hit one lymph node on the left and found a 2nd very small tumor on the right side of the tongue.

If you guys can help me with my list of questions and let me know what you think of sending her to MD Anderson after her IMRTs are done I would appreciate it.

Thanks so much everyone......you guys and this forum make this whole ordeal so much less lonely!
Tami