| Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Tami, I think that your mother was unrealistic in her expectations. Most of us were totally disabled for a time. I was off work for almost 2 years.
It is not a good thing to not be able to complete treatment. Some here have had to take short breaks, but my oncologist tells me that completing treatment is vital to survival.
I was supposed to have 3 Cisplatin infusions and they shortened it to 2. I did have a very rapid response to the radiation and my medical team all agreed that I could get away with it. If they had told me it would have made a difference in my survival odds I would would have went ahead with it in spite of how ill I got.
It is a brutal treatment and many (including yours truly) suffered immensely (I am a year younger than your mother). I am fully recovered now and back to work.
The doctors need to do a better job at managing her side effects. Nausea can be caused by many different things so they need to do a process of elimination.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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