Not that I really have anything to add to this discussion other than I lost 35% (60lbs.) of my body weight (170 lbs.) and didn't have a peg. My RO was thouroughly pissed at me for refusing to get one. In 2 years I have gained about half of that back and my weight is pretty stable now.

My opinion is identical to Karen's about her standpoint. Surviving without a PEG is a tough road to hoe. Mark, Karen and I are definitely a PEGless minority here. I was fortunate that I could even make the choice. In some facilities they won't even give you the option - get a PEG or no treatment. I am sure that this is based on their experience that most H&N patients end up malnourished without it so it's just protocol.

I think we need to have a PEG debate at the next OCF reunion! Just kidding, but maybe a separate topic for it since it is always such an emotion rousing topic (for some) and that might make archive searches easier since everything in this thread has already been said several times over the past couple of years.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)