 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tonya,
I know I mention the Simmons Comprehensive Cancer Center at University of Texas Southwestern Medical School here in Dallas but I want to add a new plug. Yesterday it was announced on the news that they are completing the process of becoming a National Comprehensive Cancer Network member! Many of the doctors were previously at MD Anderson which is also part of the University of Texas system. I would be glad to do anything to help make it happen and I would certainly be willing to go with y'all if it helps. I know we are as close as anywhere in the country for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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