| Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cocoa,
Welcome to the neighborhood. Get ready for the ride of your life. It won't be easy but it is a well traveled road. It is very important to keep yourself charged as the journey will take it's toll on you as well. Take time periodically for you so you can be all you want to be for your husband. He is very fortunate to have you by his side and especially as you are gathering information to help the process.
You will find a lot of information here but keep in mind as others are saying, everyone responds different to the same treatments. I have heard radiation is the worst of it all. I did not have surgery but I feared it the most. The chemo kicked my butt the hardest and radiation effects seemed to linger forever and I stil have some issues leftover from it.
Hang in there, it will be rough before it gets better but that day will come, too.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
