Thanks.
I have been trying to make some of her favorite foods...steak, except for filet mignon, is out, most of it is too tough-no matter how good a cut. Pastas bother her tongue. Most of her other favorites I have been avoiding because she has her heart condition now to be careful of. I think she is ready to fire me at times. I went out for dinner the other night and came home to find out that she and my dad had homemade creamed dried beef!! I frowned and told her that was a bad choice and she tearfully told me that it felt so good to eat it....it had flavor, the texture didn't hurt her and she finally felt satisfied. I feel like such a jerk at times. I am trying hard to meet all her needs and still be resepctful and let her have her independence. Geez....just writing that makess her sound so old and unaware..not the 63 yr yound woman that she is! I asked her to try to pick other heart friendly choices, there has to be some. I can't explain how confused I feel trying to help her and dad in all these areas. They tend to not think about these things. I am so opposite from them-hard to imagine sometimes that they are the people who raised me. I think part of the reason she may be in pain is that she was gardening the other day, I think she may have aggravated her sinuses and considering this is a weak area...well, I'm hoing that is all it is. I hate not understanding what is happening. Though, I do have a good friend who is a retired doctor and his wife was dying and there wasn't a thing he could do but watch...I guess it doesn't matter what you know, or think you know, this blasted disease does it's own thing.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.