Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dear Sweety,
I am truly sorry to hear of your latest news. First, I want you to know that you are always welcome here and you may feel free to vent or express any feelings you are experiencing whenever you need to. That is why we are all here for each other.
You are going through a lot of intense events and intense therapy right now. I know things are spinning in your world right now and you have every right to feel the anger, the sadness, the fear, etc. Focus hard on who you are and who you want to be with those close to you. Fight the circumstances of this disease taking control of your reactions. Remind those around you who you want to be. They are there because they love you and they fully understand your anger is directed towards the disease and not them. Never be ashamed or embarassed to apologize if you feel you did not treat someone they way you wanted to. A simple "I'm sorry" goes a long way and could open up discussion why you are so angry right now. Those closest to you will certainly understand and work with you if you let them and you communicate to them.
I am so sorry you are having to endure so much. If you ever need to talk feel free to emial me or private message me and I will be glad to give you my phone number. I am praying for you daily that God will provide you with peace and comfort and guide your medical team to the best possible treatment for you.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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