 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dani,
I am overjoyed at the GREAT news! You fret as much as you need to and we can all high five when news like this comes back. Your mother is blessed to have so much love. If it helps, ALL of us and our families are very nervous as the next test comes up and as we wait for the doctor. I catch myself peeking at his expression before he says anything but he isn't a good poker player. He had the radiologist prepare a written report between the 9:30 PET scan and the 1:30 appointment because he didn't want us to wait too long. His ear-to-ear grin was all we needed to see!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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