#33221 03-10-2004 04:47 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Christine,
I hav been silently watching your postings and have felt helpless in assisting. I want to say I'm here if you need anything.
I also want to share some thing with you and Scott. When I was just diagnosed and really not sure I was going to survive (Even after 3 years of survival, I am not certain), I was bothered a great deal by the reality that I couldn't possibly relate all my feelings and thoughts to my children (or my wife for that matter) in a long lasting meaningful way. I settled my mind by deciding to video tape myself talking and sharing my thoughts with them on tape for them to watch after I was gone. I even thought it might be neat to make a tape for each birthday so that I could be there at least in that small way. I can't imagine a better way to be a part of their life and provide support in their grief as well. I hope this might help and I wish there were more I could do.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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Point, Counterpoint
| Christine | 03-03-2004 03:54 PM |
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| Brett | 03-03-2004 04:22 PM |
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| rosie | 03-03-2004 06:12 PM |
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Anonymous
| 03-03-2004 07:53 PM |
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| Christine | 03-03-2004 09:11 PM |
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| Debbie Domer/Caregiver | 03-03-2004 10:42 PM |
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| Christine | 03-03-2004 11:47 PM |
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Anonymous
| 03-04-2004 10:13 AM |
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| Stephany | 03-07-2004 03:59 AM |
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| Christine | 03-07-2004 09:54 AM |
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Anonymous
| 03-07-2004 09:59 AM |
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| Christine | 03-07-2004 12:34 PM |
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| Gary | 03-07-2004 06:41 PM |
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| Christine | 03-08-2004 09:25 AM |
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| Marica | 03-08-2004 09:09 PM |
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| Christine | 03-08-2004 10:42 PM |
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| DanielleO | 03-08-2004 11:51 PM |
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| minniea | 03-09-2004 10:07 AM |
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| Judy U | 03-09-2004 11:24 AM |
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| BeckyR46 | 03-10-2004 03:07 AM |
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| Daniel Bogan | 03-10-2004 06:00 PM |
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| Christine | 03-10-2004 10:36 PM |
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| Mark | 03-11-2004 12:47 AM |
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| karenng | 03-11-2004 01:21 AM |
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| Christine | 03-11-2004 09:03 AM | |
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