Gita,

You should get the paperwork processed for social security disability benefits soon. Even if treatment options open or something changes, just the diagnosis would get her approved pretty much instantly and automatically. I believe they would also include medicare with that.

For ALL, I know each time we see one of our "family" here in this community face what I would call horrible news, we all get a little over sensitive and emotions flow. Our love for each other, our compassion and our fears get so intertwined. The important thing for us all to remember is that nothing should be taken personally. As in any happy family, there will be disagreements and emotional collisions from time to time. It takes tremendous courage to tell others of our pain and to use honesty in all of our interactions. I have really grown to love all of you and I pray for all of you for continued blessings, comfort and healing.

God Bless,

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023