 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Gita,
I am really sorry to hear the news. It sounds like the doctors all concur that there are few options, if any, left other than trying to keep your sister as comfortable as possible. I wish I had some advice to offer but it seems all the questions have been asked and answered.
Nobody could really make such a difficult decision other than your sister. Any further treatment may prolong her time here and the cost of that treatment would be her physical and emotional well-being. It sounds as if she is already quite worn from it all.
I wish I could tell you exactly what to do but unfortunately when the disease has progressed as it has for your sister, only the medical team can help disseminate all the data.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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