 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Betty,
Another blessing for your reward! I remember when my mother was terminally ill and we spoke of her funeral service. She didn't want much but I made sure and wrote it down and it was as if it was choreographed by her. We couldn't find one song by Rod Stewart (Rythm of My Heart)in time but we managed to get a floating urn and take her ashes to the Pacific Ocean and let her go by a lighthouse to find her way back home (Japan) as she requested. Here are the most favorite words to the song that we sang as she floated away:
"Oh rhythm of my heart is beating like a drum
with the words "I love you" rolling off my tongue
No never will I roam for I know my place is home
where the ocean meets the sky I'll be sailing"
I always remind people through these times to do everything possible to MAKE THE MEMORIES! Every day is really a gift and if we go out of our way to make memories, we can cherish those for as long as we are in this world. Sort of a gift that keeps on giving.
I am really happy for both of you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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