 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maria,
Have you read the Purpose Driven Life? One of the premises of this book is that God uses our tough times to build character for His purposes. It sounds like He has chosen you for great things. I am sorry you have had to endure so much in your lifetime.
Think of all of us as participants in one giant game of "leap frog". We go through treatment and those around help us; we finish and we help those behind us; they finish and help the next group, etc. We all have started at about the same point you are and soon you will be helping someone in your exact position.
Remember, we all are subject to our pity parties at times. We all have climbed the walls waiting for news and we all have allowed our circle of friendship and support to grow bigger by the day. Welcome to the circle!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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